In an effort to promote greater public awareness of congenital heart defects, many families turn to local support groups. One such support group was founded by two families in the greater Kansas City area.
The Congenital Heart Defects Families Association is a Kansas City area not-for-profit corporation working to bring comfort and support to area families affected by congenital heart defects. Support groups, distribution of educational literature, meals, care packages and comfort items for children undergoing cardiac procedures are the Association's main focus. Additionally, the Association diligently works to raise funds and awareness to promote congenital heart defects research through a variety of projects. One hundred percent volunteer run, the CHD Families Association strives to maximize investment in its work, not its overhead. We are the only support system in the Kansas City area for children with heart defects and their families. The association displays 3 quilts from the CHD Quilt project each year at their annual picnic and at the American Heart Association’s annual Heartwalk.
For more information visit their website at:
For contact information visit the CHD FAMILIES websit or contact
Valerie Rexin, Executive Director of Congenital Heart Defects Families Association.
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