Intermountain Healing Hearts to hold Family Summer Picnic

Two of the quilts in the series will be on display at the InterMountain Healing Hearts Family Summer Picnic. The picnic will be held at Primary Children's Medical Center100 N. Mario Capecci WaySalt Lake City, UT 84113 on Saturday, June 27, 4:00PM.

For more information please call 801-652-4672

Intermountain Healing Hearts (IHH), is a support group formed in 2007 for families of children or adults with congenital heart defects (CHD's) and heart disease who live in the greater Intermountain West Region. (Idaho, Nevada, Wyoming, Montana, and Utah) and are seen through the cardiology clinic located in Primary Children's Medical Center (PCMC) in Salt Lake City, Utah. Intermountain Healing Hearts offers resources and a caring support network as families find answers and move forward to find healing and hope.

These posts are excerpts from a powerpoint presentation that was created and shown at the 2004 CHD Awareness Quilt Show in Towson, Maryland.

If you would like a PDF version of the entire presentation, please email me at:

chdquiltproject@aol.com

Since its meager beginnings in April 2000, the Congenital Heart Defect (CHD) Awareness Quilt Project has grown to include more than twelve hundred heart blocks from all 50 states and more than twenty countries worldwide!

The quilts are constructed of heart blocks. Some of the heart blocks have angel themes.
These are in memory of someone who lost their battle with chd. Some of the heart blocks are purple. These honor those who were born with a chd and went on to have a heart transplant.

This amazing project is a series of queen-sized quilts. Each quilt honors 42 CHDers. Each quilt is constructed of heart blocks.

What goes into the making of the CHD Quilt Project

“..If I can stop one heart from breaking,
I shall not live in vain…”
Emily Dickinson

What started as one woman’s dream has become a breathtaking reality!

The dream has become a reality through the dedication and commitment of a network of volunteers worldwide

Spotlighting the CHD Awareness Quilts

Since the very first quilt block was stitched in my living room, we have diligently worked to attain our goal of passionately promoting chd awareness. This adventure has led us to be the "keepers" of this fantastic quilt project.

Each queen-sized quilt holds 42 heart blocks. Each heart block honors someone who was born with a congenital heart defect.

Over the next few weeks, we will be spotlighting each quilt along with stories of those who are honored on each quilt.

If you would like to be part of this fantastic journey, please email me ( chdquiltproject@aol.com ) with your story as well as the "location" of your block on the CHD Quilt Project.

If you need to find your block visit the Quilt Block Status page at: http://www.geocities.com/parquilter/chdblock.html

If you have questions regarding the status of your block, please email Nancy and JD parquilter@comcast.net .

Bookmark this page and come back often to read the heart-warming and touching stories of chder's and their families!

Pictures from CHD Families Association

Spotlight on CHD Awareness

In an effort to promote greater public awareness of congenital heart defects, many families turn to local support groups. One such support group was founded by two families in the greater Kansas City area.

The Congenital Heart Defects Families Association is a Kansas City area not-for-profit corporation working to bring comfort and support to area families affected by congenital heart defects. Support groups, distribution of educational literature, meals, care packages and comfort items for children undergoing cardiac procedures are the Association's main focus. Additionally, the Association diligently works to raise funds and awareness to promote congenital heart defects research through a variety of projects. One hundred percent volunteer run, the CHD Families Association strives to maximize investment in its work, not its overhead. We are the only support system in the Kansas City area for children with heart defects and their families. The association displays 3 quilts from the CHD Quilt project each year at their annual picnic and at the American Heart Association’s annual Heartwalk.

For more information visit their website at:

http://www.chdfamilies.org/

For contact information visit the CHD FAMILIES websit or contact

Valerie Rexin, Executive Director of Congenital Heart Defects Families Association.

CHD Quilt Project Pins on sale!

For a limited time, the CHD Awareness Quilt Project pin is on sale!! Show your support for the CHD Awareness Quilt Project and CHD Awareness with the purchase of these beautiful pins!

Each pin is being offered for just $4.00 or 2 pins for $6.00. The price includes shipping and handling.

For more information, visit the chdstore on our website at: http://www.chdquilt.org/

Two of the beautiful CHD Awareness Quilts on Display at the 2008 Heart Faire in California.

Upcoming CHD Events

Walk for Awareness
of Congenital Heart Defects: the #1 Birth Defect!



Saturday, February 7th
NOON – 7 p.m.

First Baptist Church
Family Life Center
213 N. Main St.
Owenton, Kentucky

Activities During Event Include:
© Silent Auction
© Usborne Book Fair
© Inflatable for Children
© Information on CHDs
© Slide Show of CHD Survivors & Angels
© Live Entertainment from Local Gospel Groups
© Food Served Throughout the Day
© Special Recognition Walk for CHD Survivors & Family of Angels

PLUS shop for your “Sweetie” for Valentine’s Day with one of our vendors while supporting the Walk!

Entry forms and information packets are available
by contacting one of the following members:
Katie Columbia: 502-463-2450
Michelle Callahan: 859-824-3247
Cydney Conley: 502-732-4289
Chas Robbins: 502-682-3889
Meg Fitzgerald: 502-463-9936
Kenda Franks: 502-484-0659

OR by stopping by the Owen County Cooperative Extension Service

Sponsored by:
God’s Special Little Hearts, Inc.
& Owen County Homemakers

Proceeds this year will benefit Kentucky Children’s Hospital/ Cardiology Division
& God’s Special Little Hearts
(a non-profit organization)

Cathy Schweinberg named Vice President CHD Awareness Quilt Project

The CHD Awareness Quilt Project has named Cathy Schweinberg as Vice President of the Congenital Heart Defect (CHD) Awareness Quilt Project.





Cathy has served as the assistant secretary to the Board of Directors for four years and has been an active member of the CHD Awareness Quilt Advisory Council since the project's founding in 2000.

We congratulate Cathy on being named to this new position!

The CHD Awareness Quilt Project Board of Directors

Spotlight on CHD Information and Resources for the CHD community

When a family first receives a diagnosis of chd, they can feel numb. They want answers! Searching the internet can often be a daunting and time consuming task. There are several websites out there that provide an excellent base to start your research. One such website is:

http://www.congenitalheartdefects.com/index.html

If you are looking for definitions of medical terms, this site provides an excellent source of chd diagnosis. There is a wealth of information here including links to support groups, articles about CHD and resources for the CHD community.

Congenital Heart Defects . com is sponsored by Baby Hearts Press.

If you have a Support group or Resource Page you would like spotlighted on the CHD Awareness Quilt Blog, please contact the project at: chdquiltproject@aol.com

Please note: We do not provide medical advice, but we do have information which can supplement what doctors and other professionals provide.

The CHD Awareness Quilt Project's AED Program

The CHD Awareness Quilt Project's main mission is to promote greater public awareness of congenital heart defects.

For several years now, Cathy Schweinberg and her wonderful family have been raising money for the CHD Awareness Quilt Project by holding a golf classic in memory of their son, Jason who lost his battle with chd at the tender age of 17. http://memorialclassic.homestead.com/

One of the programs that benefits from the hardwork and dedication of the Schweinberg family is the AED Program. So far the CHD Awareness Quilt Project has been able to donate eight AEDs to schools.

If you would like more details regarding the CHD Awareness' AED Program, please contact Cathy Schweinberg at CSchweinberg@aol.com

To learn more about Jason, visit his website at: http://www.angelfire.com/oh5/jasonslife/

How to raise money for the CHD Awareness Quilt Project without really trying!

The CHD Awareness Quilt Project has a valued following. We are amazed and honored by the generosity of so many. We want you to know (if you don’t already) you can shop on line fthrough IGIVE for things you would normally buy with a percentage of your purchases helping out the Quilt project! This is all at no cost to you. The retailers donate based on your purchase!


Use this link to JOIN iGIVE FOR FREE and begin supporting
The Congenital Heart Defect (CHD) Awareness Quilt Project:
http://www.iGive.com/welcome/warmwelcome.cfm?c=25056&m=335983



I'm using iGive.com to raise money for The Congenital Heart Defect (CHD) Awareness Quilt Project, every time I shop online (I did most of my Holiday shopping through IGive!) at any of their 724 participating stores. And when I search the web through iSearchiGive.com (a search engined powered by iGive!), I'm raising a penny or more for my cause every time.


If you do happen to make a purchase through iGive within 45 days of joining, they'll donate an EXTRA $5 to your favorite cause! With 724 stores in the iGive Mall and the new iSearchiGive.com search engine, it's easy to find the things you need AND raise money for a good cause.
HERES HOW IT WORKS:

1. Join iGive.com to support The Congenital Heart Defect (CHD) Awareness Quilt Project
It's free, safe, and easy to join.
http://www.iGive.com/welcome/warmwelcome.cfm?c=25056&m=335983

Don't feel like registering?
Take iSearchiGive.com out for a spin and raise a penny (or more!) per search. Just visit http://www.iSearchiGive.com and type "The Congenital Heart Defect (CHD) Awareness Quilt Project" in the "Select Your Cause" area

2. Shop through iGive.com's online mall
~ OR ~
Raise a penny search at iSearchiGive.com
The iGive Mall features over 700 trusted online retailers like Lands' End, Staples, NORDSTROM, JCPenney, eBay, Expedia.com, Barnes & Noble, QVC, & PETsMART to name just a few! You'll NEVER pay more when you reach these stores through iGive.com. And if you take advantage of the coupons and free shipping deals posted at iGive, you might even save a few bucks! And with iSearchiGive.com, each qualified search earns a penny (or more!) for your cause.

3. Watch the $$ roll in for The Congenital Heart Defect (CHD) Awareness Quilt Project!
Up to 26% of EACH purchase through iGive benefits your cause, along with a penny (or more!) per qualified search at iSearchiGive.com. Make that first purchase within 45 days and get a bonus $5 donation, too!


----------------------------------------------------
Don't feel like registering?
Take iSearchiGive.com out for a spin and raise a penny (or more!) per search. Just visit http://www.iSearchiGive.com and type "The Congenital Heart Defect (CHD) Awareness Quilt Project" in the "Select Your Cause" area.
----------------------------------------------------


We hope to see you at iGive.com soon!
- The CHD Awareness Quilt Project

What is The CHD Awareness Quilt Project?

Hello all! The photo you see is the first quilt in the series of queen-sized quilts (50 so far!) created and dedicated to all those born with a congenital heart defect.

Each quilt has 42 heart blocks. Each block is lovingly created to honor a chder and to passionately promote greater public awareness of congenital heart defects.

Each year, all the quilts come together in one place for one fantastic and emotional quilt show.

Throughout the year, individual quilts are displayed throughout the country at chd awareness raising events.

If you are interested in hosting an event, contact me at chdquiltproject@aol.com.

You can get more information regarding the quilt project at http://www.chdquilt.org

CHD AWARENESS QUILT SHOW 2009

The CHD Awareness Quilt Project is currently planning the 2009 CHD Awareness Quilt Show. We have interviewed several Support Groups who have expressed an interest in hosting the 2009 show.

The 2009 show will be an exciting event with over 50 quilts on display.

The CHD Awareness Quilt Project is a 501-C3 non-profit organization dedicated to promoting greater public awareness of congenital heart defects through the creative medium of quilts.

Each queen-sized quilt is dedicated to 42 individuals who were born with a congenital heart defect. For more information on this project, visit us at http://www.chdquilt.org .

If your support group has an interest in hosting one of the annual shows, please contact the project at chdquiltproject@aol.com