Spotlighting the CHD Awareness Quilts

Since the very first quilt block was stitched in my living room, we have diligently worked to attain our goal of passionately promoting chd awareness. This adventure has led us to be the "keepers" of this fantastic quilt project.

Each queen-sized quilt holds 42 heart blocks. Each heart block honors someone who was born with a congenital heart defect.

Over the next few weeks, we will be spotlighting each quilt along with stories of those who are honored on each quilt.

If you would like to be part of this fantastic journey, please email me ( chdquiltproject@aol.com ) with your story as well as the "location" of your block on the CHD Quilt Project.

If you need to find your block visit the Quilt Block Status page at: http://www.geocities.com/parquilter/chdblock.html

If you have questions regarding the status of your block, please email Nancy and JD parquilter@comcast.net .

Bookmark this page and come back often to read the heart-warming and touching stories of chder's and their families!

Pictures from CHD Families Association

Spotlight on CHD Awareness

In an effort to promote greater public awareness of congenital heart defects, many families turn to local support groups. One such support group was founded by two families in the greater Kansas City area.

The Congenital Heart Defects Families Association is a Kansas City area not-for-profit corporation working to bring comfort and support to area families affected by congenital heart defects. Support groups, distribution of educational literature, meals, care packages and comfort items for children undergoing cardiac procedures are the Association's main focus. Additionally, the Association diligently works to raise funds and awareness to promote congenital heart defects research through a variety of projects. One hundred percent volunteer run, the CHD Families Association strives to maximize investment in its work, not its overhead. We are the only support system in the Kansas City area for children with heart defects and their families. The association displays 3 quilts from the CHD Quilt project each year at their annual picnic and at the American Heart Association’s annual Heartwalk.

For more information visit their website at:

http://www.chdfamilies.org/

For contact information visit the CHD FAMILIES websit or contact

Valerie Rexin, Executive Director of Congenital Heart Defects Families Association.

CHD Quilt Project Pins on sale!

For a limited time, the CHD Awareness Quilt Project pin is on sale!! Show your support for the CHD Awareness Quilt Project and CHD Awareness with the purchase of these beautiful pins!

Each pin is being offered for just $4.00 or 2 pins for $6.00. The price includes shipping and handling.

For more information, visit the chdstore on our website at: http://www.chdquilt.org/

Two of the beautiful CHD Awareness Quilts on Display at the 2008 Heart Faire in California.

Upcoming CHD Events

Walk for Awareness
of Congenital Heart Defects: the #1 Birth Defect!



Saturday, February 7th
NOON – 7 p.m.

First Baptist Church
Family Life Center
213 N. Main St.
Owenton, Kentucky

Activities During Event Include:
© Silent Auction
© Usborne Book Fair
© Inflatable for Children
© Information on CHDs
© Slide Show of CHD Survivors & Angels
© Live Entertainment from Local Gospel Groups
© Food Served Throughout the Day
© Special Recognition Walk for CHD Survivors & Family of Angels

PLUS shop for your “Sweetie” for Valentine’s Day with one of our vendors while supporting the Walk!

Entry forms and information packets are available
by contacting one of the following members:
Katie Columbia: 502-463-2450
Michelle Callahan: 859-824-3247
Cydney Conley: 502-732-4289
Chas Robbins: 502-682-3889
Meg Fitzgerald: 502-463-9936
Kenda Franks: 502-484-0659

OR by stopping by the Owen County Cooperative Extension Service

Sponsored by:
God’s Special Little Hearts, Inc.
& Owen County Homemakers

Proceeds this year will benefit Kentucky Children’s Hospital/ Cardiology Division
& God’s Special Little Hearts
(a non-profit organization)

Cathy Schweinberg named Vice President CHD Awareness Quilt Project

The CHD Awareness Quilt Project has named Cathy Schweinberg as Vice President of the Congenital Heart Defect (CHD) Awareness Quilt Project.





Cathy has served as the assistant secretary to the Board of Directors for four years and has been an active member of the CHD Awareness Quilt Advisory Council since the project's founding in 2000.

We congratulate Cathy on being named to this new position!

The CHD Awareness Quilt Project Board of Directors

Spotlight on CHD Information and Resources for the CHD community

When a family first receives a diagnosis of chd, they can feel numb. They want answers! Searching the internet can often be a daunting and time consuming task. There are several websites out there that provide an excellent base to start your research. One such website is:

http://www.congenitalheartdefects.com/index.html

If you are looking for definitions of medical terms, this site provides an excellent source of chd diagnosis. There is a wealth of information here including links to support groups, articles about CHD and resources for the CHD community.

Congenital Heart Defects . com is sponsored by Baby Hearts Press.

If you have a Support group or Resource Page you would like spotlighted on the CHD Awareness Quilt Blog, please contact the project at: chdquiltproject@aol.com

Please note: We do not provide medical advice, but we do have information which can supplement what doctors and other professionals provide.

The CHD Awareness Quilt Project's AED Program

The CHD Awareness Quilt Project's main mission is to promote greater public awareness of congenital heart defects.

For several years now, Cathy Schweinberg and her wonderful family have been raising money for the CHD Awareness Quilt Project by holding a golf classic in memory of their son, Jason who lost his battle with chd at the tender age of 17. http://memorialclassic.homestead.com/

One of the programs that benefits from the hardwork and dedication of the Schweinberg family is the AED Program. So far the CHD Awareness Quilt Project has been able to donate eight AEDs to schools.

If you would like more details regarding the CHD Awareness' AED Program, please contact Cathy Schweinberg at CSchweinberg@aol.com

To learn more about Jason, visit his website at: http://www.angelfire.com/oh5/jasonslife/